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Spina Bifida Association of Colorado
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| Statement of Purpose: |
Spina Bifida is the most permanently disabling birth defect in the United
States. It is more common than cystic fibrosis, multiple sclerosis, and
muscular dystrophy COMBINED!
Spina Bifida occurs when the spine of the baby fails to close during the first
month of pregnancy. The effects of Spina Bifida are different for each person
and there is no known cause.
There are 65 million women of child bearing age in the United States who are
at risk of giving birth to a child with Spina Bifida, yet it is estimated that 70%
of all Spina Bifida births could be avoided if women were to take a sufficient
amount of folic acid before becoming pregnant.
Our Mission: To promote the prevention of Spina Bifida and enhance the
lives of all affected by Spina Bifida in the Rocky Mountain region.
Our Vision: People living with Spina Bifida thrive in a barrier free world that
offers ready access to resources, education, support and community
engagement. Their individual life choices are not impeded by Spina Bifida
and they all experience rich and fulfilling lives.
We were founded in 1971 by a group of parents/families looking to build a
community of support for those living with Spina Bifida. Some of those early
founders went on to establish the Spina Bifida Association of America. |
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| Phone Number: |
(303) 797-7870 |
| Email Address: |
admin@spinabifidaco.org |
| Web Site: |
http://www.spinabifidaco.org/ |
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| Director(s): |
President/Board Chair - Mark Deschamp
President/Board Elect - Danielle Lammon
Secretary - Chase Whitney
Treasurer - Grey Genenbacher
Board Members - Shelly Fowler, Joe Hartwig, Jolein Harro, Beth Hasse, Lesley
Dally |
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| Founded: |
1971 |
| Community Served: |
To promote the prevention of Spina Bifida and enhance the lives of all affected by Spina Bifida in the Rocky Mountain region. |
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